March 4, 2009
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Chronic Pain
Not many of you know this, but I have chronic pain. I’ve had it for 18 years now. I’ve been to many doctors and none of them can really help me. They can only help me manage the pain so I can live my life. I don’t think it will ever be cured. I’ve tried almost everything there is to help it.
Imagine waking up everyday in pain. Then having to go through your day as if you’re not. Raise your children. Work your full time job. Take care of your house. Just living you life. But always being in pain with every move. You learn to cope. You learn to mask it so others don’t see. You don’t want their pity. You want to seem normal. Most people when they find out are shocked because they would have never known otherwise.
Masking yourself to the world. Deep down all you feel is pain.
Comments (63)
Hey girlie! Message me :0) You are not alone. xxhugsxx
=(
I’m very sorry to hear this. I wish something could help you!
Kathi
Fibromyalgia?
I have had chronic pain most of my life, too. Found out last year (after 30 years of trying to figure out what was wrong with me) I was Vit. D deficient. Thankfully, for me, that has helped a bit. Not trying to say that’s what it is for you, but maybe that there is some hope that an answer will be found.
Oh wow, I can’t even imagine what that must be like. You must be a very strong person to be able to hide it all the time.
I can’t even begin to imagine. =(
A friend of mine, she has this incurable spinal disease, she has two kids. Her daughter is a splitting imagine of Dakota Fanning, and he son is adorable. She is the greatest mom I’ve ever seen first hand. She is always in pain, she has to take 8 medications per day, just to be able to walk. She can’t hold her kids on her lap, because it hurts to much. She can’t hold her husband in bed, and they are still in love, as they always were and thats a thing to see this day and age. Its a damn shame bad things happens to such good people. I love you Becca, <3
I couldnt imagine. I hope it gets easier for you. I can already tell your a very strong person.
@Da__Vinci - they dont know what it is
I can’t imagine what it would be like to live with something like that for years. I’m 19 and I have diagnosed migraines as of last may (almost a year now) and they don’t know what causes them. It’s hard to find medications that work for more than a few months and i hate living constantly drugged up. When i get a migraine, i’m forced to lie in bed and sleep for 17 to 20 hours out of the day. At times the pain is enough to put me into convulsions. It’s only been a year for me with my migraines, but i feel your pain. (figuratively of course) i’m really sorry that things like this happen to good people.
heyy um happyy for finding someone wrote abt my case
)
just be strongg and cheer up and put in mind , god may take something form us, but he also gives better things:)
as for me ,i realised that i have a chronic pain from 3 years ago
after i ‘ve visited my doctor he told me taht i need an operation to get cured
but i preferred to take medications other than having an operation
in fact um soo scared from thinking abt having an operation
but i always have the hope that god may cure me one day
)
so ur not alone my friend
)just tahnk god for every thing
Hey … I’m a member of that horrible club too. (I’d resign if I could, honest.)
It’s so wearing, people can’t even imagine. To breathe, to eat, to walk, to stand, to sit … It all hurts. I take meds for mine, but even that just makes life bearable …
I understand. They can’t figure out what the hell is wrong with me, either. (sigh) FMS, CFS, spinal problems, neurological problems, arthritis, tendonitis, inflamed ligaments, bone degeneration … They’re all there, but not “enough” to account for the amount of pain I feel.
One day, my dear, they will figure it out. And when they do, let’s have a freakin’ blow-out of a party, okay?
Hang in there, know that you’re not alone, and feel free to PM to vent about the “normals” who just don’t get it.
My mom’s 47, and has lived with chronic pain as well. While I haven’t lived it, I have witnessed it. But my mom refuses to take any medication and relies solely on exercising. She’s found out that the more she works out, the pain lessens (although temporarily). If she works out 2 hours in the morning, she can go on about her day with little to no pain. Perhaps something you could look into?
Me too. I’ve read studies that sugget that once a neurological path is accustomed to pain for a long time that it perfects this transmission, meaning that once it gets the “hang” of transmitting pain, it takes less trigger to register pain and sometimes won’t stop transmitting the pain signal even after the cause has ceased. Not good news for people whose nervous system have gotten really really good at transmitting pain.
And “pain management tools” (ie: drugs) have their own evils.
But I suspect there are many of us. For whatever that’s worth.
With me the people who do know think it’s something that I can just forget about. Don’t concentrate on it & it’ll go away but they don’t really know so they can’t understand. And the doctors either seem to think I’m a pill seeker or hypochondriac both of which aren’t true.
have they checked you for auto immune disorders?
my mom struggled with this, and it turned out she has fibro myalsia.
just a thought
good luck snippie.
((hugs)) i’m so sorry dearie =/ though i don’t have the constant physical pain i can relate to having to hide other kinds of pain. you’re in my prayers hon’
Maybe its borreliosis.
A friend of mine told me today that doctors finally found out she has had borreliosis for 20 years now.
It causes a LOT.
aww that’s horrible. I hope you find a way to manage it as best as you can. Take care…
I love you dear. So very much…
I am so very sorry. Do the doctor’s know what causes the pain? If I could I would take your pain on to myself… I don’t need to be painless… No kids and so forth. I hate to hear this because you are such a wonderful person and you do not deserve it!
Seems like doctors are often clueless as to the reasons for chronic anything… I’ve had awful stomach issues since I was a child, the best I’ve ever heard was “It’s just stress”… =
I’m sorry for what you’re going thru.
medical marijuana?
my dad’s had a perma-headache since the eighties. you aren’t alone.
admire your strength for trying to fight off the pain. I can’t begin to imagine. Try not to lose hope, though. The medical field is ever advancing in leaps and bounds. I have no doubt that someday (hopefully soon, rather than later) they’ll be able to figure out what is wrong and help you.
You’re not alone. I have fibromyalgia. Pain sucks. *hug*
I can stand physical pain cuz sometimes they heal. For me, my pain is in the heart and it only takes a little thing to heal it
Damn, sorry to hear that. I hope they can figure out what’s causing it and how to correct it.
~1~
how much does the pain hurt? i feel like i have that too. my back always hurts, all the time, and it affects my whole body
i have to be careful how i walk and move every moment of my life because my knees are rather keen on dislocating. and let me tell you, when it happens, i feel like i’m going to die because the pain eats my brain out.
yeah. you’re not the only one, girly.
im with ya! i know what its like… msg me if you want to chat! just remember youre not alone!!!
I also have chronic pain, I was diagnosed with fibromyalgia about 9 years ago, it really sucks…you’re definitely not alone!
Oh, that’s terrible.
I know some people might oppose to this, but ever consider medicinal marijuana?
Wow, I’d never have known. Sorry to hear. But it’s nice to know that I’m one of many readers who still love you…
*big hug*
Snippie, you can message me anytime you need someone to talk to.
Do you have fibromyalgia?
What state do you live in, Snippie? I used medical marijuana for a couple years (and have supplemented with non-medical marijuana since) when I lived in California. All stoner jokes aside, it works wonders.
We’re all here to support you!
I myself have been dealing with chronic pain everyday for almost a year now. I can’t even imagine what 18years would be like. Hang in there. I wish you well.
I feel like I wrote this post. I also have chronic pain, and they have no idea why. It’s not easy, and most days it’s really hard. Most of the time I’m positive about it, but lately I’m really starting to lose hope.
I’m here if you ever want to talk.
Hello Ms. Becca,
You made your site so simple yet elegant. I see that you have chronic pain! That’s the kind of world that we live in now, a world where sickness and death are a part of life. Fortunately, it isn’t going to stay this way much longer!
I want to help people to really get to know Jehovah God and His plans for us, especially in these troubled times, such as this plan: “The wise men are put to shame, they are dismayed and taken: lo, they have rejected the word of Jehovah; and what manner of wisdom is in them?” (Jeremiah 8:9) (ASV)
Chronic pain?
I am an acute hypochondriac, we should get together!!!
I have arthritis at 22. It fucking sucks ass, but you don’t see me grabbing for pity/attention comments because of it…
I’ve struggled with rheumatoid arthritis since I was 10. I can take the edge off with medication, but it doesn’t make it all go away.Good luck, I really hope the doctors can figure things out!
My friend has chronic pain, and she’s taken a different angle to it–she constantly whines and bitches about it. I understand, and I sympathize for her, but there’s only so much I can take. She and I have been friends since 2nd grade, and her parents babied her when the pain started in middle school. Every time she whined, her mom or dad would run to her side to help her with whatever she was doing. She’s never lifted anything herself–not joking. I’m sorry if I sound insensitive–but I really feel like her parents crippled her. DearSnippie: you’re brave and I admire you–I wish my friend could have a talk with you.
Have you been tested for Rickettsia or Lyme Disease? Both diseases can cause aches and pains, tiredness and fatigue. I was diagnosed with Rickettsia after my Mum found out she had it. Half of my family was tested and we had it. Not a lot of doctor’s know about it. You should request a test though. It’s a bacteria that can stay in your body if you have a low immune system and is treated with long-term antibiotics and proper nutrition (recommended low glycemic diet). It can be spread by fleas or ticks.
I know about it. Here are three things besides praying to Jesus that might help you out if you haven’t given them a try already:
Yoga: do every day for three months and you may never want to stop
Accupuncture: you have to follow your accupuncturist’s instructions and don’t stop your appointments until you feel better.
Weed: just sayin
I don’t have to imagine it — I’ve been living it. I got a bit of a runaround by my family doctor over it; he just thought I’d go away and stop this silliness … until I really pushed that it has to be something, because nothing doesn’t make any sense. He thought I was looking to get more painkillers even though I said I want to get this figured out so I don’t have to be on percocet anymore! I had a bone scan, a rheumatolgist visit (all of 27 minutes — what an ass) then a visit to a different kind of doc (the name is different from what it means in the USA, but a physiatrist is who really helped. He really investigated my medical history and each and every thing that was abnormal, even when I had just adapted to it and didn’t really think of it anymore.
Diagnosis after 2.5 years of treatment … fibromyalgia. They started small with meds to help it, and have added some here and there… currently Lyrica, Elavil, and Zytram are my miracle workers. I keep moving as much as humanly possible, never sitting around for more than about 20 minutes at a time — I refuse to let it get me, although it does some days, and with a vengeance! My last episode was one of the worst, even the toes I had broken over 15 years ago were throbbing like I had just done it, and the rest of my body felt like I’d been hit by a large truck, and my body temp was completely buggered up (like getting the flu when you’re cold and shivery for a while, then boiling hot and sweating, ya know?)
It sucks, and it’s frustrating that a lot of people can’t just shut up — I’ve been told I need to handle my stress better, get more sleep, and just ignore it, none of which really applyu, because I handle stress well, and get decent sleep each night, and ignoring it is out of the question. I hope your doc eventually figures out what the cause it.
I had no idea snippie, you do mask it well. I know it doesn’t help for people to say “me too!” so I wont go in to any tirades. Just know that I am here if you ever wanted to talk about it.
I’m so sorry to hear about your pain; but am a little in awe that you are so strong.
I do as well, have three different kinds of arthristis in my old bones. I know this sounds stupid, but I eat a kosher dill pickle every day and it helps. I think it has something to do with the vinegar used to make them.
My heart goes out to you. I’ve had chronic paid in both my legs for over 4 years – no one can tell me why….but I can’t imagine going through this for the 18 years that you have. I also don’t want sympathy from others….just wish there was a way to get rid of it! Hope yours gets cured soon.
Is your pain in a specific part of your body? I have chronic joint pain, though mostly it seems to be in my knees. I just had x-rays done and I’m waiting to see an orthopedic dr. A friend of mine said she had pain no doctor could explain until she got recommended to an orthopedic. I’m hoping they’ll give me the answer as well. My uncle has been having pain that no doctor can fully explain, he’s having an MRI and he’s being told that should definitely tell what’s wrong. If you haven’t already, definitely look into a orthopedic and MRI.
I hope they do figure out what’s wrong, I know it sucks.
awe.. i’m sorry that you have that pain.. i hope one day you wake up an it goes away magically